Tiffany Robin Sanders

Our Ladybug, Our Hero!
September 27, 1984 - November 29, 2014

A robin will sing during a storm. The greater the storm the more beautiful the song.
Preach often. If necessary, use words.

What is MPS III (Sanfilippo syndrome)
MPS III is a mucopolysaccharide disease also known as Sanfilippo syndrome. It takes its name from Dr. Sylvester Sanfilippo, who was one of the doctors in the United States who described the condition in 1963. What causes this disease? Mucopolysaccharides are long chains of sugar molecules used in the building of connective tissues in the body. “saccharide” is a general term for a sugar molecule (think of saccharin) “poly” means many “muco” refers to the thick jelly-like consistency of the molecules. There is a continuous process in the body of replacing used materials and breaking them down for disposal. Children with MPS III are missing an enzyme which is essential in breaking down the used mucopolysaccharides called heparan sulfate. The incomplete broken down mucopolysaccharides remain stored in cells in the body causing progressive damage. Babies may show little sign of the disease, but as more and more cells become damaged, symptoms start to appear.

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